Launch a call to help hepatitis sufferers

"hepatitis" written on board: viral hepatitis

Peak health groups have issued an urgent call for government action to better equip half a million Australians living with viral hepatitis in combating life-threatening liver disease.

Calling for increased testing, improved access to liver check-ups and rapid access to new therapies, Hepatitis Australia and the leading state and territory hepatitis organisations warn that 1000 Australian lives are lost each year due to hepatitis-related liver disease, and without urgent action, deaths from viral hepatitis will increase.

Speaking on World Hepatitis Day (28 July), Hepatitis Australia CEO, Helen Tyrrell says that Australia must never lose sight of the fact that hepatitis B and C are preventable, treatable liver health conditions.

“Chronic hepatitis B and C are liver-destroying viruses that affect half a million Australians – that’s one Australian for every 40 people, more people than the combined populations of Canberra and Darwin – yet only a fraction of these people are being monitored or treated,” she says.

“2015 has been a watershed year in the fight against viral hepatitis with a Federal Government inquiry into Hepatitis C, an advisory committee recommendation for the Government to subsidise new generation hepatitis C interferon-free therapies and improved access to hepatitis B medicines.

“However without urgent action, Australia risks squandering a huge opportunity to help half a million Australians living with chronic hepatitis B and C – that’s why we’re launching our Time For Action campaign today,” says Tyrrell.

The Time For Action campaign aims to highlight the simple but positive actions individuals, communities, healthcare providers and governments can take to combat viral hepatitis.

With a call to ‘get tested, have a liver check-up, and ask about treatment’, the campaign aims to encourage Australians living with chronic hepatitis to protect their liver health. It also includes a call for governments to increase access to liver health services and new treatments and achieve the targets set in the National Strategies.

“It is essential that communities stand shoulder-to-shoulder with people living with hepatitis to ensure we prevent, test, monitor and treat hepatitis B and hepatitis C at every opportunity,”  Tyrrell says.

The Time For Action campaign coincides with the release of new research findings from people impacted by hepatitis B and C which identifies significant barriers to testing, liver check-ups and treatment, including negative community attitudes and stigma which deter many people from seeking medical help.

Respondents to the Galaxy Research survey expressed frustration about general practitioners’ lack of knowledge and understanding of hepatitis and long waiting times to see specialists. 61% of those surveyed cited the prohibitive cost of new generation hepatitis C treatments not yet subsidised by the Federal Government as a major barrier to undergoing treatment.

Hepatitis Australia says that Australia needs to use all the tools at its disposal – from hepatitis B vaccination, needle and syringe programs, liver check-ups and antiviral therapy – to reduce the burden of chronic hepatitis B and C.

Pointing to survey respondents’ comments that they wait the best part of a year for liver clinic appointments and are ‘sick and tired of being told to hang in there’ until their liver fails or they develop liver cancer, Tyrrell says governments need to hear the message that it’s time for action.

“Many Australians living with hepatitis B and C would like nothing more than to act and start treatment, but many have excessive waits for liver clinic appointments and the new generation of hepatitis C medicines remain out of reach,” she says.

“Now is the time for the Australian governments to set limits on liver clinic waiting times, support expansion of community based hepatitis health services and subsidise new hepatitis C treatments.”

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